Kaposiform hemangioendothelioma
MONDO:0016236Kaposiform hemangioendothelioma is a very rare, aggressive, vascular tumor manifesting in the neonatal period or in infancy as cutaneous vascular tumors to large infiltrative lesions.
Also known as: Kaposiform hemangioendothelioma, KH, KHE, Kaposiform hemangio-endothelioma, congenital cutaneous multifocal kaposiform hemangioendothelioma
1448 clinical trials for this condition and its sub-types, 4 tagged with Kaposiform hemangioendothelioma itself.
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Could a lower drug dose be safer and just as effective for kids with rare tumor?
Disease control Recruiting nowThis study compares two doses of sirolimus (low vs high) given with prednisolone to children aged 0-18 who have a rare blood vessel tumor called kaposiform hemangioendothelioma with a serious blood clotting problem (Kasabach-Merritt phenomenon). The goal is to see if the lower do…
Phase 2/3 • Sponsor: Yi Ji • Aim: Disease control
Last updated Jun 27, 2026 14:00 UTC
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Scientists launch global effort to unravel mysteries of rare lymphatic diseases
Knowledge-focused Recruiting nowThis study is creating a registry of up to 1,000 people with rare lymphatic system disorders. Researchers will collect information from medical records and yearly surveys to understand how these diseases progress, what treatments are used, and how they affect quality of life. The…
Sponsor: Boston Children's Hospital • Aim: Knowledge-focused
Last updated Sep 12, 2026 00:00 UTC