Carney-Stratakis syndrome

MONDO:0011740

Carney-Stratakis syndrome is a recently described familial syndrome characterized by gastrointestinal stromal tumors (GIST) and paragangliomas, often at multiple sites.

Also known as: Carney dyad, Carney-Stratakis dyad, Carney-Stratakis syndrome, gist-paraganglioma dyad, paraganglioma and gastric stromal sarcoma, Carney-Stratakis dyad of paraganglioma and gastric stromal sarcoma, paraganglioma and gastrointestinal stromal tumor, paraganglioma and gastrointestinal stromal tumour

32 clinical trials for this condition and its sub-types, 0 tagged with Carney-Stratakis syndrome itself.

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Where it sits in the disease tree

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Part of

↑ Hereditary neoplastic syndrome (731) ↑ Multiple polyglandular tumor (62)

Including sub-types (32) Tagged with Carney-Stratakis syndrome (0)

Trials to join now! 15 Not yet recruiting 1 Not yet finished but already full! 10 Completed 6

New online tool aims to help families uncover hidden cancer risks

Knowledge-focused Not yet recruiting

This study tests whether a new online program can help families understand their inherited cancer risk and encourage relatives to get low-cost genetic testing. Researchers will enroll 400 adults who carry a cancer-related gene change and their family members. The goal is to see i…

Sponsor: Stanford University • Aim: Knowledge-focused

Last updated Jun 27, 2026 12:33 UTC

Carney-Stratakis syndrome

Where it sits in the disease tree

New online tool aims to help families uncover hidden cancer risks