Video replays of doctor visits could boost quality of life for ALS patients
NCT ID NCT07454733
First seen Mar 07, 2026 · Last updated Jun 09, 2026 · Updated 15 times
Summary
This study looks at whether giving people with ALS and their caregivers video recordings of their clinic visits helps them feel better and remember important information. About 800 participants (400 patient-caregiver pairs) from eight U.S. sites will take part. Half will get standard written notes after each visit, and the other half will also receive video recordings to watch at home. The goal is to see if videos improve quality of life over 12 months.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Dartmouth-Hitchcock Health
Lebanon, New Hampshire, 03756, United States
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Massachusetts General Hospital
Boston, Massachusetts, 021114, United States
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Mayo Clinic Jacksonville
Jacksonville, Florida, 32224, United States
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Mayo Clinic Scottsdale
Scottsdale, Arizona, 85259, United States
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Penn State Health Milton S. Hersey Medical Center
Hershey, Pennsylvania, 17033, United States
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University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania, 15213, United States
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University of Wisconsin Health
Madison, Wisconsin, 53792, United States
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Conditions
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