Tracking rare diseases in pregnancy to protect mothers and babies
NCT ID NCT06160310
Summary
This study is collecting information from pregnant women who have Tuberous Sclerosis Complex (TSC) or Lymphangioleiomyomatosis (LAM) to better understand how these conditions affect pregnancy. Participants complete monthly surveys about their health and medications during pregnancy, and researchers follow their babies for up to five years after birth. The goal is to create evidence-based guidelines to improve care for these patients during pregnancy and identify the best timing for fetal screening.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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