Teaching teens with heart defects to take charge: a program aims to ease the leap to adult care

NCT ID NCT03005626

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tests whether a therapeutic education program helps teenagers and young adults with congenital heart disease transition from pediatric to adult medical care. Participants aged 13 to 25 will either receive the education program or standard follow-up. Researchers will measure changes in quality of life over one year using a standard questionnaire.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

therapeutic education program

What this could lead to

If effective, this program could become a standard way to help teens with congenital heart disease manage their own health and maintain a better quality of life as adults.

What could go wrong

This is a relatively small study testing a behavioral program, not a drug. The results may not apply to all patients or settings, and the program may not lead to lasting improvements.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

congenital heart disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Pediatric and Congenital Cardiology and Pulmonology Department, Arnaud De Villeneuve University Hospital

    Montpellier, 34295, France