New registry aims to unlock secrets of rare kidney cancer

NCT ID NCT03630536

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This completed study created a registry of 28 patients with TFE renal cell carcinoma, a rare kidney cancer. Researchers collected medical data, tumor samples, and images to better understand the disease. The goal is to use this information to guide future research and develop more effective treatments.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could provide insights that help develop better treatments for TFE renal cell carcinoma.

What could go wrong

This is an observational registry, not a treatment trial. It does not test any therapy directly, so benefits for patients are indirect and long-term.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

renal cell carcinoma renal cell carcinoma associated with Xp11.2 translocations/TFE3 gene fusions

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Cincinnati Children's Hospital Medical Center

    Cincinnati, Ohio, 45229, United States