New study aims to unravel mysteries of rare susac syndrome
NCT ID NCT06881368
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is collecting detailed information from 180 people with Susac syndrome, a rare condition that affects the brain, hearing, and vision. Researchers want to learn more about the symptoms, possible causes, and how the disease progresses over time. The goal is to improve diagnosis and care for patients with this little-understood syndrome.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could provide a clearer picture of Susac syndrome, helping doctors diagnose it earlier and manage symptoms more effectively.
- What could go wrong
- This is an observational study, not a treatment trial. It will not test any new drug or therapy, so it cannot directly lead to a cure or new treatment.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Hôpital Bichat
RECRUITINGParis, 75018, France
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