Scientists launch deep dive into rare Brain-Eye-Ear syndrome

NCT ID NCT06881368

First seen May 11, 2026 · Last updated Jun 06, 2026 · Updated 6 times

Summary

This study aims to collect detailed information from 180 people with Susac syndrome, a rare condition affecting the brain, hearing, and vision. Researchers will track symptoms, medical history, and test results to better understand what causes the disease and how it progresses. No new treatments are being tested; the goal is simply to learn more about the syndrome.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Hôpital Bichat

    RECRUITING

    Paris, 75018, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.