Families of epilepsy patients asked to help solve SUDEP mystery
NCT ID NCT01662453
First seen Jun 09, 2026 · Last updated Jun 13, 2026 · Updated 1 time
Summary
This study aims to find out why some people with epilepsy die suddenly without a clear cause (SUDEP). Researchers are asking family members of those who died to share information through a phone interview and medical records. The goal is to create a registry of cases to identify risk factors. No treatment is offered; this is an observational study.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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NYU Comprehensive Epilepsy Center
RECRUITINGNew York, New York, 10016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.