New registry aims to solve mystery of sudden child deaths

NCT ID NCT03109197

First seen Nov 01, 2025 · Last updated Jun 16, 2026 · Updated 34 times

Summary

This study collects medical records, circumstances, and DNA from children who died suddenly and unexpectedly between ages 11 months and 18 years. Researchers will analyze this information to find risk factors and causes, with the goal of preventing future deaths. Families of affected children can participate by sharing information and samples.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • New York University School of Medicine

    RECRUITING

    New York, New York, 10016, United States

    Contact Email: •••••@•••••

    Contact

Conditions

The condition(s) this trial relates to.

Brugada syndrome sudden unexplained death in childhood

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.