New Real-World study tracks joint protection in hemophilia a patients
NCT ID NCT05911763
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows about 200 people with hemophilia A who are already taking a medicine called efanesoctocog alfa as part of their routine care. Researchers want to see how well it protects joints from bleeding over 5 years. No new treatments are given—just observation of real-world results.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Banner MD Anderson Cancer Center- Site Number : 8400008
Gilbert, Arizona, 85234-2165, United States
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Blood Center of Wisconnsin- Site Number : 8400027
Milwaukee, Wisconsin, 53233-2121, United States
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Children's Specialty Center - Las Vegas- Site Number : 8400007
Las Vegas, Nevada, 89109, United States
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Cincinnati Children's Hospital Medical Center - PIN- Site Number : 8400006
Cincinnati, Ohio, 45229-3026, United States
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Dana Farber and Boston Children's Hospital- Site Number : 8400031
Boston, Massachusetts, 02215-5418, United States
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Gulf States Hemophilia and Thrombophilia Center- Site Number : 8400029
Houston, Texas, 77030, United States
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Hemophilia Center of Western Pennsylvania- Site Number : 8400012
Pittsburgh, Pennsylvania, 15213-4306, United States
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Indiana Hemophilia and Thrombosis Center- Site Number : 8400013
Indianapolis, Indiana, 46260-1920, United States
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Johns Hopkins All Childrens Hospital - Outpatient Care Center - PIN- Site Number : 8400025
St. Petersburg, Florida, 33701-4804, United States
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Loma Linda University- Site Number : 8400015
Loma Linda, California, 92354-3450, United States
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M Health Fairview- Masonic Cancer Clinic - Clinics- Site Number : 8400010
Minneapolis, Minnesota, 55455-4800, United States
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Mayo Clinic - PPDS- Site Number : 8400035
Rochester, Minnesota, 55905-0001, United States
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Mississippi Center For Advanced Medicine - 7731 Old Canton Rd- Site Number : 8400016
Madison, Mississippi, 39110-6115, United States
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Orthopedic Institute for Children- Site Number : 8400004
Los Angeles, California, 90007, United States
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Rush University Medical Center -1725 W Harrison St- Site Number : 8400014
Chicago, Illinois, 60612-3863, United States
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The Bleeding and Clotting Disorders Institute- Site Number : 8400005
Peoria, Illinois, 61615, United States
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The Center for Inherited Blood Disorders- Site Number : 8400001
Orange, California, 92868, United States
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University Of Iowa Hospitals And Clinics- Site Number : 8400026
Iowa City, Iowa, 52242-1009, United States
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University of Colorado Hemophilia and Thrombosis Center- Site Number : 8400019
Aurora, Colorado, 80045-7202, United States
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University of Michigan Hospital - 1500 E Medical Center Dr- Site Number : 8400023
Ann Arbor, Michigan, 48109-5000, United States
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University of Nebraska Medical Center - 985400 Nebraska Medical Center- Site Number : 8400009
Omaha, Nebraska, 68114-4113, United States
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University of Texas Southwestern Medical Center- Site Number : 8400011
Dallas, Texas, 75390-8565, United States
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University of Texas Southwestern Medical Center-2001 Inwood Rd- Site Number : 8400020
Dallas, Texas, 75390-7202, United States
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Vanderbilt University Medical Center- Site Number : 8400003
Nashville, Tennessee, 37232-0011, United States
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Washington Institute for Coagulation- Site Number : 8400022
Seattle, Washington, 98101-3932, United States
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Weill Cornell Medicine-New York Presbyterian Hospital- Site Number : 8400021
New York, New York, 10065-4870, United States
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William A. Shands Hospital at the University of Florida- Site Number : 8400032
Gainesville, Florida, 32610-3003, United States
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~Massachusetts General Hospital- Site Number : 8400017
Boston, Massachusetts, 02114, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- A Once-a-Week shot could transform hemophilia Care—Even for those with inhibitors
- Can a new clotting factor offer better bleed protection for severe hemophilia?
- Do newer hemophilia drugs protect joints better? study aims to find out
- Newborn screening study aims to catch rare diseases at birth
- Could home blood tests transform hemophilia care? study seeks patient views
- New clotting factor shows promise for hemophilia a bleeds