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New tool to measure steroid impact on Kids' lives

NCT ID NCT07350395

Recruiting now Knowledge-focused Sponsor: University of the West of England Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is developing a patient-reported outcome measure (PROM) to assess how steroids affect the quality of life of children and young people with rheumatic conditions. Researchers will hold focus groups and interviews with 70 participants and their families to create and test the questionnaire. The goal is to better capture the real-world impact of steroid treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance
glucocorticoids (steroids)
What this could lead to
If successful, this could lead to a new tool that helps doctors and families better understand and manage the side effects of steroids in children with rheumatic conditions.
What could go wrong
This is an early-stage study focused on developing a questionnaire, not testing a treatment. The results may not lead to immediate changes in care.

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Conditions

The condition(s) this trial relates to.

rheumatic disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

RHEUMATIC DISEASES RHEUMATIC DISORDER RHEUMATOLOGIC CONDITIONS (JRA,LUPUS)

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Alder Hey Hospital

    RECRUITING

    Liverpool, North Somerset, L12 2AP, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Bristol Royal Hospital for Children

    RECRUITING

    Bristol, North Somerset, BS2 8BJ, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Royal Hospital for children Glasgow

    RECRUITING

    Glasgow, North Somerset, G51 4TF, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

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