Eye disease mystery unraveled: new study tracks rare vision loss
NCT ID NCT04591483
First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 29 times
Summary
This study follows people aged 10 and older with Stargardt-like macular dystrophy caused by ELOVL4 gene changes. Over three years, researchers will track vision and retinal health using eye exams, imaging, and light tests. The goal is to learn how the disease naturally progresses, which may help design future treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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