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Life after a seizure emergency: study tracks hidden toll on mind and body

NCT ID NCT06100978

Recruiting now Knowledge-focused Sponsor: Versailles Hospital Source: ClinicalTrials.gov ↗

First seen Jul 07, 2026 · Last updated Jul 08, 2026 · Updated 1 time

Summary

This study follows adults who survived a severe, prolonged seizure (status epilepticus) that required intensive care. Researchers want to understand how this experience affects quality of life, thinking abilities, emotional health, and daily function months to years later. They also measure the burden on family members. The goal is to better describe the long-term challenges survivors face, which could guide future care and support.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this could reveal what long-term challenges survivors face and help design better support and rehabilitation programs.
What could go wrong
This is an observational study, not a treatment trial. It cannot prove what causes the impairments, and results may not apply to all patients.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Patient Satisfaction Status Epilepticus

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

BURDEN INTENSIVE CARE UNIT LONG TERM OUTCOMES PATIENT REPORTED OUTCOMES PATIENT SATISFACTION RELATIVES STATUS EPILEPTICUS

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • CH Versailles

    RECRUITING

    Le Chesnay, France

    Contact

    Contact

  • CH d'Angoulême

    RECRUITING

    Angoulême, France

    Contact Email: •••••@•••••

  • CH d'Arras

    NOT_YET_RECRUITING

    Arras, France

    Contact Email: •••••@•••••

  • CH de Béthune

    RECRUITING

    Béthune, France

    Contact Email: •••••@•••••

  • CH de Cannes

    RECRUITING

    Cannes, France

    Contact Email: •••••@•••••

  • CH de La Rochelle

    RECRUITING

    La Rochelle, 17019, France

    Contact Email: •••••@•••••

  • CH de Roanne

    RECRUITING

    Roanne, France

    Contact Email: •••••@•••••

  • CH de Toulon

    RECRUITING

    Toulon, France

    Contact Email: •••••@•••••

  • CHU Tours

    ACTIVE_NOT_RECRUITING

    Tours, France

  • CHU de Besançon

    ACTIVE_NOT_RECRUITING

    Besançon, France

  • CHU de Brest

    RECRUITING

    Brest, France

    Contact Email: •••••@•••••

  • CHU de Dijon

    ACTIVE_NOT_RECRUITING

    Dijon, France

  • CHU de Grenoble

    RECRUITING

    Grenoble, France

    Contact Email: •••••@•••••

  • CHU de Lyon

    RECRUITING

    Lyon, France

    Contact Email: •••••@•••••

  • CHU de Nantes

    RECRUITING

    Nantes, France

    Contact Email: •••••@•••••

  • Hôpital Beaujon

    RECRUITING

    Clichy, France

    Contact

  • Hôpital Foch

    RECRUITING

    Suresnes, France

    Contact Email: •••••@•••••

  • Hôpital Henri Mondor

    RECRUITING

    Créteil, France

    Contact Email: •••••@•••••

  • Hôpital Paris Saint Joseph

    RECRUITING

    Paris, France

    Contact Email: •••••@•••••

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