New study aims to map how stargardt disease worsens over time
NCT ID NCT06435000
First seen Jun 26, 2026 · Last updated Jun 26, 2026
Summary
This observational study will follow 75 people aged 12 to 65 with Stargardt disease type 1, a genetic eye condition that causes vision loss. Researchers will use eye exams and imaging to track how the disease changes over time. The goal is to better understand the disease's progression, which could help in planning future treatments.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could help researchers design future treatments by providing a clearer picture of how Stargardt disease progresses.
- What could go wrong
- This is an observational study, not a treatment trial. It will not test any new drug or therapy, so there is no direct benefit to participants. The results may not lead to any immediate medical advances.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
Locations
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Bascom Palmer Eye Institute
RECRUITINGMiami, Florida, 33136, United States
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CUIMC/Edward S. Harkness Eye Institute
RECRUITINGNew York, New York, 10032, United States
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Columbia University Medical Center
RECRUITINGNew York, New York, 10032, United States
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Duke Eye Center
RECRUITINGDurham, North Carolina, 27710, United States
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Emory University
RECRUITINGAtlanta, Georgia, 30322, United States
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Kellogg Clinical Research Center
RECRUITINGAnn Arbor, Michigan, 48105, United States
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Leeds Teaching Hospitals NHS Trust
RECRUITINGLeeds, LS9 7T, United Kingdom
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Massachusetts Eye and Ear Infirmary
RECRUITINGBoston, Massachusetts, 02114, United States
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Moorfields Eye Hospital
RECRUITINGLondon, London, EC1V 2PD, United Kingdom
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Oregon Health & Science University
RECRUITINGPortland, Oregon, 97239, United States
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Oxford Eye Hospital
RECRUITINGOxford, OX3 9DU, United Kingdom
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Retina Foundation of the Southwest
RECRUITINGDallas, Texas, 75231, United States
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Shiley Eye Institute
RECRUITINGSan Diego, California, 92093, United States
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UCHealth Sue Anschutz-Rodgers Eye Center
RECRUITINGAurora, Colorado, 80045, United States
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University Eye Hospital Tübingen
RECRUITINGTübingen, 72076, Germany
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University of Manchester - The Old St Mary's Hospital
RECRUITINGManchester, M13 9WL, United Kingdom
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University of Wisconsin, Madison
RECRUITINGMadison, Wisconsin, 53715, United States
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Universitätsklinikum Bonn, Klinik für Augenheilkunde
RECRUITINGBonn, 53127, Germany
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Vitreo Retinal Associates
RECRUITINGGainesville, Florida, 32607, United States
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Wilmer Eye Institute, Johns Hopkins University MD 21287
RECRUITINGBaltimore, Maryland, 21287, United States
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