China launches major study to track rare muscle disease in children
NCT ID NCT05042921
Summary
This study is creating a national registry to understand how spinal muscular atrophy (SMA) naturally progresses in children under 18 in China. It will also track how and when children receive approved SMA treatments in real-world settings. The goal is to gather knowledge to help improve future care by observing 600 pediatric participants, not to test a new treatment.
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Contacts and locations
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Locations
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Anhui Children's Hospital
Hefei, Anhui, 230006, China
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Beijing Children's Hospital, Capital Medical University
Beijing, Beijing Municipality, 100045, China
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Children's Hospital Affiliated to Shandong University
Jinan, Jinan Shandong, 250022, China
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Children's Hospital of Chongqing Medical University
Chongqing, Chongqing Municipality, 400014, China
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Children's Hospital of Fudan University
Shanghai, Shanghai Municipality, 201102, China
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Dalian Women and Children's Medical Group
Dalian, Liaoning, 116037, China
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Fujian Medical University Union Hospital
Fuzhou, Fujian, 350001, China
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Hunan Children's Hospital
Changsha, Hu'nan, 410007, China
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Jiangxi Provincial Children's Hospital
Nanchang, Jiangxi, 330006, China
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Maternity and Child Health Care of Guangxi Zhuang Autonomous Region
Nanning, Guangxi Zhuang, 530002, China
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People's Hospital of Ningxia Hui Autonomous Region
Yinchuan, Ningxia Hui, 750002, China
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Shengjing Hospital of China Medical University
Shenyang, Liaoning, 110022, China
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Shenzhen Children's Hospital
Shenzhen, Guangdong, 518026, China
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The Affiliated Hospital of Inner Mongolia Medical University
Hohhot, Inner Mongolia, 010050, China
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The Children's Hospital, Zhejiang University School of Medicine
Hangzhou, Zhejiang, 310052, China
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The First Affiliated Hospital, Sun Yat-sen University
Guangzhou, Guangdong, 510080, China
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The First Hospital of Jilin University
Changchun, Jilin, 130021, China
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The Second Affiliated Hospital of Xi'An Jiaotong University
Xi’an, Shanxi, 710004, China
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The Second Hospital of Hebei Medical University
Shijiazhuang, Hebei, 050000, China
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The Third Affiliated Hospital of Zhengzhou University
Zhengzhou, Henan, 450052, China
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West China Second University Hospital, Sichuan University
Chengdu, Sichuan, 610041, China
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Wuhan Children's Hospital, Tongji Medical College Huazhong University of Science & Technology
Wuhan, Hubei, 430010, China
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Xiamen Maternal and Child Health Hospital
Xiamen, Fujian, 361003, China
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Xiangya Hospital, Central South University
Changsha, Hu'nan, 410008, China
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Xuzhou Central Hospital
Xuzhou, Jiangsu, 221009, China
Conditions
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