Why are so many adults with SMA missing out on Life-Changing treatments?
NCT ID NCT07223489
Summary
This study aims to understand the real-world experiences of adults with Spinal Muscular Atrophy (SMA) as they navigate diagnosis and treatment. Researchers will review medical records and conduct interviews with up to 200 patients to identify why many adults aren't receiving available therapies and what barriers they face. The goal is to improve care pathways and reduce disparities in access to specialized treatment.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for SPINAL MUSCULAR ATROPHY (SMA) are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
MedStar Health Research Institute
RECRUITINGWashinton, District of Columbia, 20010, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
Explore the condition pages connected to this study.