Scientists probe why SMA patients still feel worn out despite treatment
NCT ID NCT06955897
Summary
This study aims to better understand how people with Spinal Muscular Atrophy experience physical fatigue during their daily activities while receiving nusinersen treatment. Researchers will follow 45 adolescents and adults who have been on stable nusinersen dosing for at least 6 months, using a new questionnaire specifically designed for SMA patients. The goal is to measure how fatigue changes before and after treatment doses and learn more about this persistent symptom.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Columbia University Irving Medical Center
RECRUITINGNew York, New York, 10032, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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