New toolkit helps doctors tell families about sickle cell trait

NCT ID NCT05387564

First seen Jan 08, 2026 · Last updated Apr 23, 2026 · Updated 22 times

Summary

This study tested a set of tools to help pediatric doctors better document and discuss sickle cell trait (SCT) results with families. SCT is often found during newborn screening but is rarely recorded or shared. The study involved 114 primary care providers and measured how well they accepted and used the tools. The goal was to improve communication and record-keeping, not to treat or cure any condition.

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Contacts and locations

Locations

  • Nemours Children's Hospital, Delware

    Wilmington, Delaware, 19803, United States

Conditions

Explore the condition pages connected to this study.