New registry aims to unlock secrets of rare bleeding disorder
NCT ID NCT05437536
First seen Apr 25, 2026 · Last updated May 15, 2026 · Updated 3 times
Summary
This study creates a database of information from 400 people with severe von Willebrand disease, a bleeding disorder. Participants share their medical history, symptoms, and lab results through a secure website. The goal is to better understand the disease and support future research, not to test a new treatment.
Disclaimer
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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VWD Connect Foundation
RECRUITINGWellington, Florida, 33414, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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