New registry aims to unlock secrets of rare bleeding disorder
Knowledge-focused
Recruiting now
This study creates a database of information from 400 people with severe von Willebrand disease, a bleeding disorder. Participants share their medical history, symptoms, and lab results through a secure website. The goal is to better understand the disease and support future rese…
Sponsor: VWD Connect Foundation • Aim: Knowledge-focused
Last updated May 18, 2026 12:07 UTC