Global SBMA database merger aims to unlock secrets of rare muscle disease
NCT ID NCT07443449
First seen Mar 09, 2026 · Last updated Apr 24, 2026 · Updated 6 times
Summary
This study links existing patient registries from 11 countries to analyze data from 700 people with spinal and bulbar muscular atrophy (SBMA). Researchers will compare medical records, test results, and disease progression over time. The goal is to better understand how SBMA develops and changes, without testing any new treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, 20133, Italy
Conditions
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