Global data pooling aims to unlock secrets of rare muscle disease
NCT ID NCT07443449
First seen Mar 09, 2026 · Last updated May 24, 2026 · Updated 15 times
Summary
This study brings together patient data from SBMA registries in multiple countries, including Italy, the UK, US, Japan, and others. Researchers will analyze existing medical records and test results from 700 people with spinal and bulbar muscular atrophy to track how the disease progresses over time. The goal is to learn more about the condition without offering any new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, 20133, Italy
Conditions
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