Thousands join sarcoidosis registry to map disease journey

NCT ID NCT06234384

Recruiting now Knowledge-focused Sponsor: Foundation for Sarcoidosis Research Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This registry study aims to collect information from over 6,800 people with sarcoidosis about their symptoms, diagnosis, treatments, and daily life. Participants complete surveys and can share their electronic health records. The goal is to create a detailed picture of sarcoidosis over time to help researchers better understand the disease and improve care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could help researchers better understand sarcoidosis and identify unmet needs, potentially guiding future treatments.
What could go wrong: This is an observational registry, not a treatment trial. It will not directly test any therapy, and results depend on patient participation and data quality.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

sarcoidosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SARCOIDOSIS

Contacts and locations

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Study contacts

Contact

Email: •••••@•••••

Locations

Foundation For Sarcoidosis Research
RECRUITING

Chicago, Illinois, 60654, United States

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