Global effort launches to map the journey of rett syndrome
NCT ID NCT04900493
Summary
This study is creating a worldwide registry to collect information from caregivers about living with Rett syndrome. It aims to better understand the disease, track symptoms and treatments over time, and help researchers design better future studies. The data is collected remotely and can help families manage care while contributing to science.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Rett Syndrome Research Trust
RECRUITINGTrumbull, Connecticut, 06611, United States
Contact Email: •••••@•••••
Contact Email: •••••@•••••
Conditions
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