Teens with NF try video coaching to boost mood and health

NCT ID NCT03873610

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested two 8-week stress management programs delivered via secure video calls for 196 adolescents aged 12–17 with neurofibromatosis (NF1 or NF2). The goal was to see if these programs could improve emotional, social, and physical quality of life. Both programs taught coping skills for stress and NF symptoms, and the study measured changes using standard quality-of-life questionnaires.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Stress and symptom management programs (behavioral intervention via videoconferencing)

What this could lead to

If successful, this could provide a practical, home-based way to help teens with neurofibromatosis better cope with stress and improve their quality of life.

What could go wrong

This is a completed behavioral study, not a drug trial, so it won't change the underlying disease. Results may not apply to all teens with NF, and improvements may be modest or short-lived.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

neurofibromatosis neurofibromatosis type 1 NF2-related schwannomatosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Massachusetts General Hospital

    Boston, Massachusetts, 02140, United States