App aims to track rare muscle disease from home
NCT ID NCT05812144
Summary
This study tested whether a mobile app could reliably monitor adults with Facioscapulohumeral Muscular Dystrophy (FSHD) from their homes. Over 12 months, 70 participants used the app to record videos of exercises and answer questions about pain, fatigue, and daily life. The goal was to see if this remote method works well enough to help future drug trials and patient care.
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Contacts and locations
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Locations
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CHRU de Lille
Lille, Hauts-de-France, 59000, France
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CHU de Nice
Nice, Provence-Alpes-Côte d'Azur Region, 06000, France
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Institut de Myologie
Paris, Île-de-France Region, 75013, France
Conditions
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