Tracking Takhzyro's Real-World impact on kids with rare swelling disorder
NCT ID NCT07251933
Summary
This study aims to understand how well the preventive medication Takhzyro (lanadelumab) works for children with hereditary angioedema (HAE) in everyday life. It will look at the medical records of about 40 children, aged 2 to under 12, who are already taking Takhzyro to prevent sudden, serious swelling attacks. The main goal is to see how long children stay attack-free while on this treatment and to learn about its safety and real-world use patterns.
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Contacts and locations
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Study contacts
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Contact
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Locations
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AP-HM- Hopital de La Timone
RECRUITINGMarseille, Bouches-du-Rhone, 13005, France
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AP-HP - Hopital Armand Trousseau
RECRUITINGParis, 75012, France
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CHU de Grenoble Alpes - Hopital Couple-Enfant
RECRUITINGLa Tronche, Grenoble, 38700, France
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Centro de Alergia e Inmunologia Clinica Mar del Plata
NOT_YET_RECRUITINGMar del Plata, Buenos Aires, 7600, Argentina
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Charite Campus Virchow-Klinikum-Augustenburger Platz 1
NOT_YET_RECRUITINGBerlin, 13353, Germany
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Children and Youth Health Care Institute of Vojvodina
NOT_YET_RECRUITINGNovi Sad, 21000, Serbia
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Childrens University Hospital
NOT_YET_RECRUITINGBelgrade, 11000, Serbia
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Hadassah Medical Center- Ein Kerem - PPDS
NOT_YET_RECRUITINGJerusalem, 9112001, Israel
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Hamophilie Zentrum Rhein Main GmbH
NOT_YET_RECRUITINGFrankfurt am Main, Hesse, 60596, Germany
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Hospital Italiano de Buenos Aires
NOT_YET_RECRUITINGBuenos Aires, Ciudad Autonoma de BuenosAires, C1199ABB, Argentina
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Hospital de Ninos Sor Maria Ludovica
NOT_YET_RECRUITINGLa Plata, Buenos Aires, B1904CSI, Argentina
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Hospital de Pediatria S.A.M.I.C.- Prof. Dr. Juan P. Garrahan
NOT_YET_RECRUITINGCiudad de Buenos Aires, Buenos Aires F.D., C1249ABN, Argentina
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Klinikum St. Georg Leipzig
NOT_YET_RECRUITINGLeipzig, Saxony, 4129, Germany
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Mother and Child Health Care Institute of Serbia Dr Vukan Cupic
NOT_YET_RECRUITINGBelgrade, 11000, Serbia
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Royal Victoria Infirmary
NOT_YET_RECRUITINGNewcastle upon Tyne, Tyne and Wear, NE1 4LP, United Kingdom
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Sanatorio de la Canada-Cordoba
NOT_YET_RECRUITINGCórdoba, X5000BSQ, Argentina
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Schneider Childrens Medical Center of Israel Petah Tikvah PIN
NOT_YET_RECRUITINGPetah Tikva, 4910000, Israel
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Tel Aviv Sourasky Medical Center
NOT_YET_RECRUITINGTel Aviv, 6423906, Israel
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The Royal London Hospital - PPDS
NOT_YET_RECRUITINGLondon, E1 1FR, United Kingdom
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Universitaetsklinikum Schleswig-Holstein - Campus Luebeck
NOT_YET_RECRUITINGLübeck, Schleswig-Holstein, 23538, Germany
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Universitatsklinikum Frankfurt am Main
NOT_YET_RECRUITINGFrankfurt am Main, Hesse, 60590, Germany
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Universitatsklinikum Leipzig
NOT_YET_RECRUITINGLeipzig, Saxony, 4103, Germany
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Universitatsklinikum Munster
NOT_YET_RECRUITINGMünster, North Rhine-Westphalia, 48149, Germany
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Universitatsklinikum Ulm
NOT_YET_RECRUITINGUlm, Baden-Wurttemberg, 89081, Germany
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Conditions
Explore the condition pages connected to this study.