500 volunteers needed to unlock secrets of rare cancers and family risk

NCT ID NCT05350761

First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 32 times

Summary

This study aims to learn how inherited genes and environmental factors contribute to rare tumors and cancer in individuals and families. Up to 500 people of any age with unusual tumors, a family history of cancer, or certain exposures can join. Participants provide medical history, samples, and may have exams, but no treatment is given. Researchers will follow them until at least 2035 to track health outcomes.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • NIH National Cancer Institute - Shady Grove

    RECRUITING

    Rockville, Maryland, 20850, United States

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.