Global hunt for clues to stop rare blindness
NCT ID NCT05589714
Summary
This study aims to build a detailed registry and track the natural progression of rare genetic eye diseases that cause vision loss, like retinitis pigmentosa. It will follow 1,500 participants worldwide who have specific rare genetic variants to understand how their vision changes over time. The goal is to gather essential information to help design future clinical trials for potential treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Baylor College of Medicine, Alkek Eye Center
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHNO des Quinze-Vingts
RECRUITINGParis, 75012, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Centre for Eye Research Australia
RECRUITINGEast Melbourne, Victoria, Australia
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Duke University, Duke Eye Center
RECRUITINGDurham, North Carolina, 27705, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Emory University, Emory Eye Center
RECRUITINGAtlanta, Georgia, 30322, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ghent University
NOT_YET_RECRUITINGGhent, Belgium
Contact
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Hadassah-Hebrew University Medical Center
RECRUITINGJerusalem, 9112001, Israel
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Harvard Univ., Massachusetts Eye and Ear Infirmary
RECRUITINGBoston, Massachusetts, 02114, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Helsinki University Hospital
RECRUITINGHelsinki, 00100, Finland
Contact Phone: •••-•••-•••• Email: •••••@•••••
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INRET Clínica e Centro de Pesquisa
RECRUITINGBelo Horizonte, Minas Gerais, 30150-270, Brazil
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Instituto de Genética Ocular
RECRUITINGSão Paulo, São Paulo Province, Brazil
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Johns Hopkins University, Wilmer Eye Institute
RECRUITINGBaltimore, Maryland, 21236, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Mayo Clinic
RECRUITINGRochester, Minnesota, 55905, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Medical College of Wisconsin Eye Institute
RECRUITINGMilwaukee, Wisconsin, 53226, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Moorfields Eye Hospital
RECRUITINGLondon, EC1V 2PD, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Oregon Health & Science Univ., Casey Eye Institute
RECRUITINGPortland, Oregon, 97239, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Oslo University Hospital
NOT_YET_RECRUITINGOslo, Norway
Contact Email: •••••@•••••
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Radboud University Medical Center
RECRUITINGNijmegen, 6525 GA, Netherlands
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Retina Foundation of the Southwest
RECRUITINGDallas, Texas, 75231, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Retina and Genomics Institute
RECRUITINGYucatán, Merida, Mexico
Contact Phone: •••-•••-••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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UPMC Eye Center
RECRUITINGPittsburgh, Pennsylvania, 15213, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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USC Roski Eye Institute
NOT_YET_RECRUITINGLos Angeles, California, 90033, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Health Network
RECRUITINGToronto, M5T 2S8, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Basel
RECRUITINGBasel, Canton of Basel-City, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Jules-Gonin
RECRUITINGLausanne, 1004, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Alberta and Alberta Health Services
RECRUITINGEdmonton, Alberta, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Arkansas, Jones Eye Institute
RECRUITINGLittle Rock, Arkansas, 72205, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of California San Francisco
RECRUITINGSan Francisco, California, 94158, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Florida Health Jacksonville
RECRUITINGJacksonville, Florida, 32209, United States
Contact Email: •••••@•••••
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University of Miami, Bascom Palmer Eye Institute
RECRUITINGMiami, Florida, 33136, United States
Contact Phone: •••-•••-••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Michigan, Kellogg Eye Center
RECRUITINGAnn Arbor, Michigan, 48105, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Pennsylvania, Scheie Eye Institute
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Toronto, Hospital for Sick Children
RECRUITINGToronto, Ontario, M5G 2L3, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University of Utah, John Moran Eye Center
RECRUITINGSalt Lake City, Utah, 84132, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University of Wisconsin Madison
RECRUITINGMadison, Wisconsin, 53711, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Vista Vision Eye Clinic
RECRUITINGBrescia, 25123, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.