New tool aims to give voice to heart sarcoidosis patients
NCT ID NCT05145023
Summary
This study aimed to create and test a new questionnaire specifically designed to measure how cardiac sarcoidosis affects a patient's quality of life. Researchers worked with patients and doctors to develop the questions, then had 130 patients with the condition fill it out to see if it was reliable and accurate. The goal is to give doctors a better way to understand and track the day-to-day challenges their patients face.
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Contacts and locations
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Locations
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Royal Papworth Hospital NHS Foundation Trust
Cambridge, CB20AY, United Kingdom
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St Bartholomew's Hospital - Barts Health NHS Trust
London, EC1A 7DN, United Kingdom
Conditions
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