HD families share thoughts on research in new survey

NCT ID NCT06343220

First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 24 times

Summary

This completed study surveyed 131 people affected by Huntington's disease (HD) to learn about their feelings, attitudes, and beliefs toward clinical research. Participants included people with HD or those at risk, aged 18 and older, living in the United States. The goal was to help researchers design better studies in the future.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HUNTINGTON DISEASE are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Huntington Study Group

    Rochester, New York, 14618, United States

Conditions

Explore the condition pages connected to this study.