New study uses smartphone app to track Real-Life impact of friedreich ataxia
NCT ID NCT05943002
First seen Apr 02, 2026 · Last updated May 14, 2026 · Updated 9 times
Summary
This study aims to learn more about the daily challenges, quality of life, and costs for people with Friedreich Ataxia (FA). About 200 participants from Germany, Austria, and France will use a mobile app to report their experiences over six months. The goal is to better understand the real-world effects of FA, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Department of Neurology, RWTH Aachen University
RECRUITINGAachen, 52074, Germany
Contact Email: •••••@•••••
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Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik
RECRUITINGMünich, 80336, Germany
Contact Email: •••••@•••••
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German Center for Neuro-degenerative Diseases (DZNE)
RECRUITINGBonn, 53127, Germany
Contact Email: •••••@•••••
Contact
Contact Email: •••••@•••••
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Klinik für Neurologie, Medizinische Universität Innsbruck
RECRUITINGInnsbruck, 6020, Austria
Contact Email: •••••@•••••
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Neurologische Klinik und Hertie-Institut für Klinische Hirnforschung, Universitätsklinik Tübingen
NOT_YET_RECRUITINGTübingen, 72076, Germany
Contact Email: •••••@•••••
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Paris Brain Institute
RECRUITINGParis, 75013, France
Contact Email: •••••@•••••
Contact Email: •••••@•••••
Contact
Conditions
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