Tracking babies born to moms on rare disease drug

NCT ID NCT05734521

Summary

This study aims to collect safety information on pregnant and breastfeeding women with Pompe disease who are taking the medication Nexviazyme (avalglucosidase alfa). Researchers will follow the women and their babies for up to 10 years to check for any pregnancy complications or effects on the child's health and development. The goal is to better understand the risks and safety of using this treatment during pregnancy and breastfeeding.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for PREGNANCY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Investigational site worldwide

    RECRUITING

    Bridgewater, New Jersey, 08807, United States

Conditions

Explore the condition pages connected to this study.