New hope for rare bleeding disorder: drug shows promise in Follow-Up study

NCT ID NCT07018401

First seen Nov 01, 2025 · Last updated May 06, 2026 · Updated 26 times

Summary

This study follows 62 adults with hereditary hemorrhagic telangiectasia (HHT) who previously took pomalidomide in a clinical trial. Researchers are checking how well the drug controls nosebleeds and other bleeding over time, as well as its safety. The goal is to see if pomalidomide remains effective for managing this chronic condition.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Cleveland Clinic

    Cleveland, Ohio, 44195, United States

  • Johns Hopkins University

    Baltimore, Maryland, 21218, United States

  • Massachusetts General Hospital

    Boston, Massachusetts, 02114, United States

  • Mayo Clinic

    Rochester, Minnesota, 55905, United States

  • Medical College of Wisconsin

    Milwaukee, Wisconsin, 53226, United States

  • University of California-San Diego

    San Diego, California, 92093, United States

  • University of California-San Francisco

    San Francisco, California, 94143, United States

  • University of Florida

    Gainesville, Florida, 32610, United States

  • University of North Carolina, Chapel HIll

    Chapel Hill, North Carolina, 27599, United States

  • University of Pennsylvania

    Philadelphia, Pennsylvania, 19104, United States

  • University of Utah

    Salt Lake City, Utah, 84112, United States

Conditions

Explore the condition pages connected to this study.