Can a camera and a pen ease the burden of a rare disease?
NCT ID NCT06872268
Summary
This small study explored whether adding photography and journaling activities to regular care could help people with Marfan syndrome. Eight participants tried these creative activities to see if they improved their emotional well-being and coping. The main goal was to see if this approach was practical and how patients felt about it, not to test a medical cure.
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Contacts and locations
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Locations
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IRCCS Policlinico San Donato
San Donato Milanese, Italy, 20097, Italy
Conditions
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