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Can family photo stories ease the emotional toll of caring for a medically complex child?

NCT ID NCT07774663

Symptom relief Sponsor: Seattle Children's Hospital Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting This study
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 19, 2026 · Last updated Aug 20, 2026 · Updated 1 time

Summary

This trial tests whether creating photo-narratives—captioned photo stories about a child's life, strengths, and important people—can help families of children with medical complexity cope and find meaning. About 40 parents or caregivers will be randomly assigned to either create a photo-narrative with clinician support or receive usual care. The study will measure how feasible and acceptable the intervention is, and whether it improves hope, meaning, and connection.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Photo-narratives (a behavioral intervention where families create captioned photo stories about their child's life and strengths)
What this could lead to
If effective, this could offer a simple, meaningful way to support emotional well-being and legacy for families of children with medical complexity.
What could go wrong
This is a small pilot study, so results may not be conclusive. The intervention may not significantly improve outcomes, and participation requires time and emotional effort.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Phase 2

Tests whether the treatment actually works, and watches for side effects, in a larger group.

Participants

About 40 people

The number the study aims to enrol. It can still change while the study runs.

Expected to start

Jun 2027

An estimate. Start dates often move.

Expected to finish

Jun 2028

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

3 months and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * has a child who receives care at one of the study sites for a complex medical condition and is followed by the complex care and/or palliative care team * has a child who is ages 3 months through 25 years old * has a child who has previously been home/discharged * has a child whose life expectancy of \>6 months Exclusion Criteria: * are not the child's identified parent/legally authorized representative * has a preferred language of care other than English or Spanish * has an active psychiatric or chronic health concerns that preclude research participation * has active child protective services involvement

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As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Children with medical complexity (CMC) Family caregivers

How to take part

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  1. The official record

    The full official record for this study. This one lists no contact details, but it is the first place any would appear.

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  2. A doctor treating you

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