New imaging study aims to uncover hidden inflammation in genetic heart disease

NCT ID NCT05450783

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is looking at 80 people with a genetic heart condition called arrhythmogenic cardiomyopathy, which can cause sudden cardiac death. Researchers will use a special PET-MRI scan to see if there is inflammation in the heart muscle, which is hard to detect with standard tests. The goal is to better understand how inflammation affects the disease and its outcomes, without offering any direct treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could lead to a non-invasive way to detect inflammation in the heart, helping doctors better predict disease progression and guide future treatments.

What could go wrong

This is an early observational study with only 80 participants, so results may not apply to everyone. It does not test a treatment, so direct patient benefits are uncertain.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

arrhythmogenic right ventricular cardiomyopathy myocarditis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • AP-HP La Salpêtrière

    RECRUITING

    Paris, 75013, France

    Contact Email: •••••@•••••

  • CHU Angers

    RECRUITING

    Angers, 49000, France

    Contact Email: •••••@•••••

  • CHU Brest

    RECRUITING

    Brest, 29000, France

    Contact Email: •••••@•••••

  • CHU de Nantes

    RECRUITING

    Nantes, 44093, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Rennes

    RECRUITING

    Rennes, 35000, France

    Contact Email: •••••@•••••