Massive study tracks 4,000 kids with rare bleeding disorder
NCT ID NCT02979119
Summary
This study is creating a large European registry to collect information about children with haemophilia A or B. Researchers will follow 4,000 children born between 2000 and 2040 to better understand why some develop antibodies against their treatment (inhibitors) and how the disease affects their joints over time. The study only collects data from routine medical care; it does not test new treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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A. Bianchi Bonomi Hemophilia and Thrombosis Centre IRCCS Ca' Granda Ospedale Maggiore Policlinico
COMPLETEDMilan, 20122, Italy
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Azienda Ospedaliero Universitaria Careggi
RECRUITINGFlorence, Italy
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Birmingham Children's Hospital NHS Trust - Department of Haematology
RECRUITINGBirmingham, United Kingdom
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Centre de traitement des hémophiles Hôpital Universitaire Purpan
RECRUITINGToulouse, F-31052, France
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Centro Hospitalar São João, S. Imuno-hemoterapia
RECRUITINGPorto, Portugal
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Charité Campus Virchow Klinikum, Klinik für Pädiatrie m.S. Onkologie und Hämatologie
RECRUITINGBerlin, Germany
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Children's Health Ireland (CHI) at Crumlin
RECRUITINGDublin, Ireland
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Children's Hospital Helsinki University Hospital
RECRUITINGHelsinki, FIN-00029, Finland
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Department of Haematology Royal Hospital for Sick Children
RECRUITINGGlasgow, G 3885, United Kingdom
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Department of Internal Medicine, Hemophilia Treatment Center, Vivantes Klinikum im Friedrichshain
RECRUITINGBerlin, Germany
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Department of Paediatric Haematology/oncology - University Hospital Motol
RECRUITINGPrague, 150 06, Czechia
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Department of Pediatrics Århus Kommunehospital Skejby Sygehus
RECRUITINGAarhus, DK-8200, Denmark
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Department of Pediatrics, Clinic of Coag. Disorders Karolinska Hospital
RECRUITINGStockholm, S-17176, Sweden
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Division of Haematology/Oncology Hospital for Sick Children
RECRUITINGToronto, M5G-1X8, Canada
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Division of Hematology/Oncology Hôpital St Justine
RECRUITINGMontreal, H3T 1C5, Canada
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Dr. v. Haunersches Kinderspital University of Munich
RECRUITINGMunich, D-80337, Germany
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Gaslini Hospital
RECRUITINGGenova, I-16184, Italy
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Haemophila Center Great Ormond Street Hospital for Children
COMPLETEDLondon, WC1N3JH, United Kingdom
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Haemophilia Comprehensive Care Centre, Centre for Thrombosis and Haemostasis Children's University Hospital Brno
RECRUITINGBrno, 613 00, Czechia
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Haemophilia-Haemostasis Unit St. Sophia Children's Hospital
RECRUITINGAthens, GR-11527, Greece
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Hospital General Unidad de Hemofilia 1 Sur Hospitales Universitarios Virgen del Rocio
COMPLETEDSeville, 41013, Spain
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Hämophilie Zentrum Rhein Main
RECRUITINGFrankfurt, D-60596, Germany
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Inselspital Bern, University Children's Hospital
RECRUITINGBern, Switzerland
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Institut für Experimentelle Hämatologie und Transfusionsmedizin Universitätsklinikum Bonn
RECRUITINGBonn, D-53127, Germany
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Klinik Bremen-Mitte Prof.-Hess-Kinderklinik
RECRUITINGBremen, D 28177, Germany
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Lund University Hospital
RECRUITINGMalmo, S-20502, Sweden
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Medical University of Vienna - Department of Paediatrics
RECRUITINGVienna, Austria
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Oslo University Hospital
NOT_YET_RECRUITINGOslo, Norway
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Royal Hospital for Sick Children
COMPLETEDEdinburgh, EH9 1LF, United Kingdom
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Service Hématologique Centre Regional Traitement d'Hemophilie Bicetre
RECRUITINGLe Kremlin-Bicêtre, F-94270, France
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Service d'Hématologie Pédiatrique Hôpital Universitaire La Timone
RECRUITINGMarseille Cedex-05, F-13385, France
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Service of Pediatric Haematology University Hospital Leuven
RECRUITINGLeuven, B-3000, Belgium
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The National Hemophilia Center Sheba Medical Center, Tel Hashomer
RECRUITINGRamat Gan, 52621, Israel
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Unidad de Coagulopatias Congenitas Hospital Universitario la Fe
RECRUITINGValencia, 46009, Spain
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Unidad de Coagulopatías Hospital Universitario La Paz
RECRUITINGMadrid, 28046, Spain
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Unitat Hemofilia Hospital Vall d'Hebron
RECRUITINGBarcelona, 08035, Spain
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University Hospital Frankfurt & Goethe University - Clinical and Molecular Hemostasis, Department of Pediatrics
RECRUITINGFrankfurt am Main, Germany
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Universitäts-Klinik für Kinder- und Jugendheilkunde
COMPLETEDGraz, A-8036, Austria
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Van Creveld Kliniek University Medical Center Utrecht
RECRUITINGUtrecht, 3508 GA, Netherlands
Contact
Conditions
Explore the condition pages connected to this study.