FACTOR IX DEFICIENCY
Clinical trials for FACTOR IX DEFICIENCY explained in plain language.
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Massive study tracks 4,000 kids with rare bleeding disorder
Knowledge-focused Recruiting nowThis study is creating a large European registry to collect information about children with haemophilia A or B. Researchers will follow 4,000 children born between 2000 and 2040 to better understand why some develop antibodies against their treatment (inhibitors) and how the dise…
Matched conditions: FACTOR IX DEFICIENCY
Sponsor: PedNet Haemophilia Research Foundation • Aim: Knowledge-focused
Last updated Mar 31, 2026 12:12 UTC
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Massive 15-Year study launches to track safety of new blood disorder drugs
Knowledge-focused Recruiting nowThis study aims to collect long-term safety and effectiveness data on treatments for various non-cancerous blood disorders, including hemophilia, von Willebrand disease, and platelet disorders. It will follow up to 3,000 participants for at least 15 years to see how newer, FDA-ap…
Matched conditions: FACTOR IX DEFICIENCY
Sponsor: American Thrombosis and Hemostasis Network • Aim: Knowledge-focused
Last updated Mar 27, 2026 12:38 UTC