A digital lifeline: could Real-Time symptom tracking transform care for kids with advanced cancer?

NCT ID NCT03408314

Completed Symptom relief Sponsor: Joanne Wolfe, MD, MPH Source: ClinicalTrials.gov ↗

First seen Aug 07, 2026 · Last updated Aug 07, 2026

Summary

This trial tests whether a new care approach, called PediQUEST Response, can improve quality of life for children, adolescents, and young adults with advanced cancer. Participants use an app to regularly report symptoms and quality of life, and a palliative care team receives these reports and meets with families to address distress. The study compares this approach to usual cancer care, measuring changes in quality of life and parent well-being over 16 weeks.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: PediQUEST Response, a system combining electronic symptom and quality-of-life feedback with early palliative care team involvement
What this could lead to: If it works, this could establish a new standard of care that eases suffering and improves quality of life for children with advanced cancer and their families.
What could go wrong: The trial is relatively small and early, and the intervention depends on how well families and providers engage with the system. Results may not apply to all settings.

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Conditions

The condition(s) this trial relates to.

cancer neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

ADVANCED CANCER

Contacts and locations

Locations

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, 60611, United States
Boston Children's Hospital

Boston, Massachusetts, 02215, United States
Dana Farber Cancer Institute

Boston, Massachusetts, 02215, United States
Seattle Children's Research Institute

Seattle, Washington, 98145-5005, United States
Texas Children's Hospital

Houston, Texas, 77030, United States
The Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104-4318, United States

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