Groundbreaking study maps childhood muscle decline to Fast-Track future treatments

NCT ID NCT06847282

Summary

This study aims to understand how a specific form of muscular dystrophy (FSHD) progresses in children and teenagers. Researchers will follow 80 participants for two years, using movement tests and full-body MRI scans to track changes in muscle health and function. The goal is to gather the data needed to design better future treatment trials for this pediatric population.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Duke University

    RECRUITING

    Durham, North Carolina, 27708, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • Murdoch Children's Research Institute

    RECRUITING

    Melbourne, Australia

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Stanford University

    NOT_YET_RECRUITING

    Palo Alto, California, 94304, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Iowa

    NOT_YET_RECRUITING

    Iowa City, Iowa, 52242, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Kansas Medical Center

    RECRUITING

    Kansas City, Kansas, 66160, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Rochester

    RECRUITING

    Rochester, New York, 14642, United States

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Utah

    NOT_YET_RECRUITING

    Salt Lake City, Utah, 84112, United States

    Contact Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.