New questionnaire aims to give voice to kids with transplant side effects
NCT ID NCT04044365
First seen Dec 29, 2025 · Last updated Jun 02, 2026 · Updated 28 times
Summary
This study is developing a new questionnaire to better understand and measure symptoms in children and teens living with chronic graft-versus-host disease (cGVHD), a common side effect after a stem cell transplant. Researchers will work with children aged 5-17 and their parents to create age-appropriate tools that capture how bothersome symptoms are. The goal is to improve symptom tracking and quality of life assessment for young patients.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children s National Medical Center (CNMC)
ACTIVE_NOT_RECRUITINGWashington D.C., District of Columbia, 20010, United States
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Children's & Women's Health Centre of British Columbia (CWHC of BC)
ACTIVE_NOT_RECRUITINGVancouver BC, Canada
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Children's Healthcare of Atlanta - Egleston Hospital
ACTIVE_NOT_RECRUITINGAtlanta, Georgia, 30322, United States
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Children's Hospital Colorado (CHCO)
ACTIVE_NOT_RECRUITINGAurora, Colorado, 80045, United States
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Children's Wisconsin
RECRUITINGMilwaukee, Wisconsin, 53226, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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City of Hope
NOT_YET_RECRUITINGDuarte, California, 91010, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fred Hutchinson Cancer Center (FHCC)
ACTIVE_NOT_RECRUITINGSeattle, Washington, 98109, United States
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Hospital for Sick Children (SickKids)
ACTIVE_NOT_RECRUITINGToronto, Canada
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Johns Hopkins Hospital (JHH)
ACTIVE_NOT_RECRUITINGBaltimore, Maryland, 21287, United States
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Lurie Children's Hospital of Chicago
ACTIVE_NOT_RECRUITINGChicago, Illinois, 60611, United States
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National Institutes of Health Clinical Center
ACTIVE_NOT_RECRUITINGBethesda, Maryland, 20892, United States
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Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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St. Jude Children s Research Hospital
ACTIVE_NOT_RECRUITINGMemphis, Tennessee, 38105, United States
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Texas Children's Hospital (TCH)-Baylor
ACTIVE_NOT_RECRUITINGHouston, Texas, 77030, United States
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The University of Texas MD Anderson Cancer Institute
ACTIVE_NOT_RECRUITINGHouston, Texas, 77030, United States
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University of Minnesota
ACTIVE_NOT_RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of Pittsburgh - Children's Hospital of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15224, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.