Global registry seeks to unlock secrets of rare childhood cancer

NCT ID NCT00700414

First seen Jan 03, 2026 · Last updated Jun 13, 2026 · Updated 24 times

Summary

This study is a worldwide registry that collects medical information, family cancer history, and tumor samples from children and teens with adrenocortical tumors. Researchers aim to better understand the disease, how it is treated, and the role of genes like TP53. Participants include patients up to age 21, their biological parents, and relatives with a TP53 mutation and cancer.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • All Children's Hospital/St. Petersburg Hospital

    COMPLETED

    St. Petersburg, Florida, 33701, United States

  • Cook Children's Medical Center

    COMPLETED

    Fort Worth, Texas, 76104, United States

  • St. Jude Children's Research Hospital

    RECRUITING

    Memphis, Tennessee, 38105, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Stanford University

    COMPLETED

    Stanford, California, 94305, United States

  • The Children's Medical Center

    RECRUITING

    Dayton, Ohio, 45404, United States

    Contact

    Contact

    Contact

Conditions

Explore the condition pages connected to this study.