Scientists track brittle bone disease from birth to adulthood
NCT ID NCT00001594
Summary
This study aimed to understand how a rare genetic condition called osteogenesis imperfecta (brittle bone disease) progresses over time in children and young adults. Researchers followed 88 participants from birth up to age 25 to observe how the disease affects walking, growth, bone strength, and other body systems like the heart, lungs, and hearing. The goal was to gather detailed information to better monitor and manage the condition, not to test a new treatment.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for OSTEOGENESIS IMPERFECTA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
Conditions
Explore the condition pages connected to this study.