Scientists launch massive registry to unlock secrets of brittle bone disease

NCT ID NCT04115774

Recruiting now Knowledge-focused Sponsor: Luca Sangiorgi Source: ClinicalTrials.gov ↗

First seen Nov 20, 2025 · Last updated May 16, 2026 · Updated 20 times

Summary

This study is building a large database of information from up to 5,000 people with osteogenesis imperfecta (brittle bone disease). Researchers will collect medical history, genetic data, and quality-of-life details to better understand how the disease progresses and how it affects people over time. No new treatments are being tested, and participants are not required to take any study medications.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Irccs Istituto Ortopedico Rizzoli
RECRUITING

Bologna, Emilia-Romagna, 40136, Italy

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

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OSTEOGENESIS IMPERFECTA