New study aims to revolutionize care for rare PXE disease
NCT ID NCT06636344
First seen Apr 09, 2026 · Last updated Apr 28, 2026 · Updated 3 times
Summary
This study looks at whether using telemedicine and care plans tailored to a patient's age and symptoms can help more people with the rare genetic disorder PXE get the follow-up care they need. Researchers will track 650 patients over several years to see if this new approach improves the number of people who stay connected with their specialist center. The goal is to make care more convenient and effective for patients, their local doctors, and the hospital team.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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CHU Angers
RECRUITINGAngers, 49033, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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