Can a video or a phone call help people with NF1 get better care?
NCT ID NCT07233408
First seen Jun 27, 2026 · Last updated Jul 16, 2026 · Updated 2 times
Summary
This study looks at whether online videos or a call with a peer navigator can help adults with neurofibromatosis 1 (NF1) who have low health literacy better understand their condition and care recommendations. Fifty participants across the U.S. will receive personalized care letters and either educational videos or a coaching call before their annual checkup. The goal is to see if these tools are practical and helpful, not to test a new drug or treatment.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- Active substance
- NF1 educational videos and peer navigator calls
- What this could lead to
- If successful, this could show that simple online tools and peer support help people with NF1 understand their health better and talk to their doctors more effectively.
- What could go wrong
- This is a small, early feasibility study with only 50 participants, so results may not apply to everyone. It tests understanding, not a medical treatment, so it won't directly change disease outcomes.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
Massachusetts General Hospital
RECRUITINGBoston, Massachusetts, 02114, United States
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