Watching brittle bone disease: new study tracks kids to unlock OI's secrets

NCT ID NCT03575221

First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 27 times

Summary

This study followed 46 children with osteogenesis imperfecta (OI), a condition that causes fragile bones and short stature, to understand how the disease progresses and how genes affect it. Participants had regular checkups, scans, and tests over several years, but no new treatments were tested. The goal was to gather information to help future research.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.