Can a simple guide boost lifesaving screenings for NF1 patients?
NCT ID NCT06262113
First seen Jun 27, 2026 · Last updated Jul 17, 2026 · Updated 2 times
Summary
This study aims to find out which of two educational programs better helps adults with Neurofibromatosis 1 (NF1) and parents of children with NF1 get the recommended health screenings during their regular checkups. Participants live across the U.S. and do not currently visit a specialized NF clinic. The study is fully online and compares the effectiveness of the two programs in improving screening rates.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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