New test aims to end diagnostic odyssey for rare disease families

NCT ID NCT03163771

Summary

This study tested a new strategy to diagnose rare genetic conditions called peroxisomal disorders more quickly and accurately. It involved 8 patients, both children and adults, who showed symptoms or had family history of these diseases. The approach used a broader set of initial lab tests and genetic analysis to try to shorten the often lengthy search for a correct diagnosis.

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Contacts and locations

Locations

  • Département de Pédiatrie, Unité de Génétique Clinique, CHU d'Amiens

    Amiens, 80054, France

  • Hôpital Jeanne de Flandres, CHRU

    Lille, France

  • Pédiatrie, CHU Clémenceau de Caen

    Caen, 40433, France

  • Pédiatrie, Pavillon Mère et Enfant, CHU Ch. Nicolle de Rouen

    Rouen, 76031, France

Conditions

Explore the condition pages connected to this study.